Welcome to the Bladder Exstrophy Family Association…
Our mission is to supply reliable and balanced information regarding this condition. This information is provided by professionals and families caring for children, adolescents and adults affected by bladder exstrophy, cloacal exstrophy and epispadias. The Association is based in the UK with strong links worldwide.
What is Bladder Exstrophy?
Bladder exstrophy/epispadias occurs in approximately 1 in 30,000 – 50,000 live births and can sometimes be noted ante-natally. It is more likely to occur in males than in females and the risk of having a second child with bladder exstrophy/epispadias is approximately 1 in 100. If a parent has bladder exstrophy the incidence of having a child with the condition is approximately 1 in 70. Bladder exstrophy/epispadias is a surgically correctable birth defect, however it must be remembered that each child is unique, therefore each child’s care is specific to individual needs.
For more information on bladder exstrophy visit why not visit our frequently asked questions page or join our forum by clicking on the buttons below. Also, click here to read a personal account written by one of our volunteers of what it was like to grow up with bladder exstrophy and how to deal with challenges that people may face.